Minnesota Rett Syndrome Research Association Logo

Minnesota Rett Syndrome Research Association

Fully committed to improving the lives of all who live with Rett Syndrome

2009 Rett Syndrome Education Event

Gillette Children's LogoMRSRA Logo

 

 

Please join Gillette Children’s Specialty Healthcare and the Minnesota Rett Syndrome Research Association for a day of learning and connection for people living with Rett Syndrome, and their caregivers.

During this event we will be focused on:
Understanding conditions associated with Rett
Current and future research and care directives
The impact of pain among persons with Rett

Agenda
8:00-8:45

Check in/Meet and Greet/Light Breakfast
8:45 Welcome to Gillette

Jason Kelecic, DPT
9:00-9:30

Assessing pain among persons with Rett

Raymond Tervo, MD,
Frank Symons, PhD,
Breanne J Byiers, BA
9:30-10:15 Understanding Seizures                Denise Leighty, RN, CNP
10:15-10:45 Break
10:45-11:30

Scoliosis: Background, Identification and Management

 Sarah Gutknecht, DNP, RN, CNP              
11:30-12:15 Update on Rett Care and Research Art Beisang, MD
12:15

Lunch

Join Us

Saturday, May 30th, 2009 8:00 a.m.

Gillette Lifetime Specialty Care Clinic
435 Phalen Boulevard
St. Paul, MN 55130 [map]

651-636-9443