About MRSRA
We submitted our paperwork for and were granted 501(c)(3) charitable designation in 2002. This was done primarily as a means to more easily channel funds raised locally to the international research organizations that we support.
Our primary activity has historically been our annual charity fundraiser. Because of this activity and our website, many newly diagnosed families have contacted Minnesota Rett Syndrome Research Association officers looking for advice and support. As such, our organizaiton has come to realize a much greater need in Minnesota and the region to promote wellness and education in a variety of ways to families of those affected by Rett syndrome in a variety of ways.
We are continually discussing better ways
and new ways to help those affected with Rett Syndrome.