Welcome to the Minnesota Rett Syndrome Research Association!

It is the mission of the Minnesota Rett Syndrome Research Association to fund important Rett Syndrome research initiatives, and promote wellness and education of families within our community that are affected by Rett Syndrome.

URGENT!!!

Hi friends!

We urgently need your help! Please write our Senator and congresspersons today!

Ask for their pledge of support on important funding SPECIFIC TO RETT SYNDROME. This letter can be used, and will explain exactly what is at stake.

Ours is a rare disorder, and we significantly rely on NIH support to make progress! Sources of funding are being taken away on a specific project that we need to see through urgently. This particular initiative is absolutely necessary to prepare the Rett community for clinical trials when treatments and a cure are established, and we are quite literally within reach folks! Our time is now.

So please, take just a few moments to review the letter, customize it with your personal information, print it and mail it. I suggest printing a copy and mailing, and perhaps even faxing it to each of their offices listed below.

Thank you,

Dan Brinkhaus, and the MRSRA Board of Directors

Congressional letter.doc

Senator Amy Klobuchar

Washington, DC Office
302 Hart Senate Office Building
Washington, DC 20510
phone: 202-224-3244
fax: 202-228-2186

Metro Office
1200 Washington Avenue South, Suite 250
Minneapolis, MN 55415
Main Line: 612-727-5220
Main Fax: 612-727-5223
Toll Free: 1-888-224-9043

Southern Office
1134 7th Street NW
Rochester, MN 55901
Main Line: 507-288-5321
Fax: 507-288-2922

Northwestern & Central Office
121 4th Street South
Moorhead, MN 56560
Main Line: 218-287-2219
Fax: 218-287-2930

Northeastern Office
Olcott Plaza, Suite 105
820 9th Street North
Virginia, MN 55792
Main Line: 218-741-9690
Fax: 218-741-3692

Toll Free Number:
1-888-224-9043

And congresspersons here....

http://www.house.gov/

Upcoming Events

3rd Annual Rett Syndrome Family Picnic

This year's picnic is sponsored by the grandparents of our girls.

We want the picnic to be a relaxed, informal event for our girls and their families to have an afternoon of fun!

Please see the event page for more information, and to RSVP (by June 15th) for the event.

Sunday, June 21st (Father's Day)
Mount Olivet Retreat Center
7984 257th Street West
Farmington, MN 55024 [map]

2009 Golf and Dinner Charity Event

It's spring here in Minnesota, and that means it will be summer soon. And as those of us live here are all too aware that the summer goes by too fast.

What does all this mean? Well, it means that MRSRA's annual Golf and Dinner event will be here before we know it!

Much planning has been going on throughout the long, cold winter, to make this year's even another great success! Check back here for further information, but remember to SAVE THE DATE!

Saturday, Aug. 22nd, 1:00 p.m.
The Wilds Golf Club
Prior Lake, MN

Run Walk Roll for Rett

Also just around the corner is the annual Run Walk Roll for Rett Syndrome.

Come out and enjoy what we hope will be a beautiful late autumn afternoon, meet some of the special angels, and enjoy a relaxing walk with friends and family, all while raising money for important Rett Syndrome Research!

Sunday, Oct. 4th, 1:00-4:00 p.m.
Veteran's Park
Richfield, MN